Ava slept all night last night without waking once! She fussed for just a couple minutes at one point but went right back to sleep. That is great progress. She slept until 8 this morning, which was fine because we did get snow last night and were delayed a little bit this morning. We didn’t get into the hospital until about 10am.
Since Ava slept late, we didn’t do her bath before we got to NJH, so we did that first thing. We only had to wrap her head/face and didn’t have to use any steroids, except for a very small amount on the couple spots that are being stubborn. That is just a little spot on her forehead and a similar size spot on her lower back. These were two of her favorite spots to scratch.
When it was time to take her wraps off, she ate a little lunch and then we did a food challenge. We challenged soy today and did just fine. Soy is something that our family does not eat, however something like soy lecithin can be hard to avoid at times, so it’s good to know that she isn’t bothered by soy.
It was my turn to do the nose wash today so that I was prepared to do it over the weekend. It was tough because Ava has such a tiny little nose! It really is effective, helping to flush out any allergens.
So, that was it for today. The nurse and I went over the plan for the weekend. I will still bathe Ava twice a day, but only have to wrap her head/face tomorrow morning and night. Come Sunday, if I don’t think she needs the wrap after her morning bath, we can skip it. We really need to keep our eye on any flaky skin and be sure to moisturize often, but don’t need the steroids!
We left about 3pm, just in time for the snow to start again.
It has been a long week and I am looking forward to (hopefully) a restful weekend. Ava has come a long way in just 5 days! I am praying that we can keep her skin looking and feeling as good as it does now. Next week we will spend most of our time doing food challenges.